12/2/15

We just landed back in LA from a unforgettable amazing trip to Orlando FL. We left Sat night and landed back WED night after 4 days of non stop fun and action. This was all arranged by a organization called Ohr Meir (which has a website and a instagram page @ohrmeir). They annually take children fighting cancer from across America to Orlando on a all expense paid trip. They have an amazing medical staff, amazing counselors most of them Eli knew from Camp Simcha along with amazing food. This is all arranged by the Friedman family in memory of their son Meir who fought 7 hard years and was niftar in 1994. The happiness they bring which is clearly written on every one of the kids faces is a sight you won’t see anywhere. The caring counselors and staff combined with the entire Friedman family makes this trip not possible to duplicate. 

Generally this is only for kids but Eli’s physical situation and need for medical attention I had to join to physically help him along the way. Eli enjoyed Sea World, Universal Studios, Disney Magic Kingdom, a shopping spree at Toys R Us and the list goes on. Ari Dembitzer, Nurse Brocha, Dr Steinhartz, Hachusen Yakov Jeidel and of course Eli’s most caring counselor Eliyahu Katz along with the entire staff made Eli enjoy this trip and all we can say is THANK YOU THANK YOU. 

BAH Eli has been feeling ok and Thursday morning it’s back to CHLA for a procedure to put in a picc line as a added IV site so that for the next round of treatment they won’t have to scare Eli with the IV pricks. This is all in preparation to begin the next round of chemo/immunotherapy together again begining IYH on Sunday or Monday depending when a bed becomes available. It will go the entire week until Friday/Shabos. BH this time they are starting Eli prior to this painful treatment on a few different pain meds to hopefully make it a lot easier beezrat hashem. 

Once this treatment round is over we will then schedule scans to see what this treatment did for Eli and once again decide from there the best approach to further treatment. Other then that for the most part Eli has been relatively quiet and as always when there is no post it’s because no news is good news. 

Another child from the UK whose parents we have been in contact with and who did very well during treatment unfortunately has relapsed and we are davening that his parents are given clear direction on the best treatment for ‎Hillel Sholom Shachneh Ben Rivka and that he should be zoche to a refua shelayma bkarov. 

These young children are also fighting and having them in mind would be appreciated and IYH will be a zchus

Menucha Rochel Bas Gila Elka‎
Golda Bas Miriam‎ ‎
Gittel Bas Shoshana Rochel
Yonasan Refoel Ben Baila
Avrohom Ben Leah
Malka Braindel Bas Shayna Shifra

And of course Elimelech Ben Basya bsoch shaar choley yisroel AMEN  
Tizku lmitzvos

2 thoughts on “12/2/15

  1. Tom Barad

    You guys are amazing. It is inspiring. My wife and I read your updates and pray harder that Eli Melech should have a refuah shalayma.

    Sending much love,

    T

  2. Ayobola

    Thank you for the update.

    I am moved by Eli’s strength in the face of these challenges. Please let him know that I am praying and trusting HaShem for his (complete) refuah shalayma.

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