Eli or Elimelech Ben Basya is our 2nd child. He is always there with the right answer and the perfect smile. Eli was born on 8/25/05 and is in Toras Emes academy in 2nd grade.
In the middle of August 2012 Eli began having extreme lower left abdominal pain only at night while he was asleep or in bed. We took him a few times to the emergency room and the told us that it’s gas or constipation or a combination of both. The pain over the next month would start to subside however right after Succos (mid-end of October) the pain came back full force and we really began to worry. Next Eli began to lose some weight and always seemed to be exhausted. Next he ran a pretty hi fever for a week, at which point we decided to take a blood test. The blood test for the most part came back ok aside from something called the SED rate which generally just tells you if you have inflammation or a virus and that number was pretty high.
Our pediatric doctor Dr. Kisheneff (who has been there EVERY step of the way morning,lunch,afternoon and night) told us to go to a gastrenologist which we did and he said based on his symptoms we should take a CT scan. We were advised that although Eli’s SED rate was pretty high we should hold off on the CT scan because of the extreme levels of radiation. We held off but we continued to closely monitor Eli and continued to do a barrage of blood tests for everything that different doctors recommended. Nothing came back as being positive however his SED rate climbed even higher.
At this point Dr Kisheneff advised us to take a ultrasound which we did and discovered that Eli had enlarged lymph nodes but not terribly enlarged. The strange part was that they were only enlarged in his belly and not by his neck or underarms (which normally would be the case if his nodes were enlarged). At that point we went to Children’s hospital and saw Dr. Freyer who is a hymotologist (blood doctor) who ruled out lymphoma based on the above facts but said that since Eli’s SED rate had become alarmingly high at this point he said the only test left to take was a CT scan. So we scheduled for the scan 3 days later. For a CT scan you may not eat or drink for many hours prior to the test other then the drink they give you which is to highlight the problem areas. Not eating or drinking wasn’t fun but Eli did it like he does everything like a champ.
Very shortly after he was done the CT scan our worst nightmare was confirmed. Eli has cancer!!!! Wow what do we do who do we turn to? How can and will we handle this? Once again DR Kisheneff along with DR Adler from CHLA who also had been advising us all along were both there to direct us. Unfortunately for them but fortunate for us we have a few local friends who have been down the same road with one of their kids were unbeleivable and instrumental in guiding us and coaching us thru the long scary beginning process.
And that leaves us here with the daily blog update on Elimelech Ben Basyas condition and situation.
Thank gd we have extremely helpful parents, siblings, family and friends and we know with their help and with our doctors help and most mportantly hashems help we will win this chapter and see Eli live healthy until 120.