7/30/14

BH Eli had a very good night sleep finally and woke up pretty late. As soon as he got up the DR came in and said the cultures all remained negative and was discharged from CHLA and home before 11:30AM. We spent the day helping Eli get back to himself and relaxing.

Once again communication with the DRs has been terrible and after finally getting a call this morning from the DR in NY he gave me the go ahead to postpone the next round of MIBG therapy for a month. Late in the afternoon I received a call from the DR in LA explaining that since it is being pushed off Eli will need to undergo a unplanned round of chemo. I made it clear that beezrat hashem that will not happen and I am ready as soon as NY is ready to take us we will be there. So on Thursday we will head back to CHLA to check Elis blood counts and if they are ok hopefully we will travel on Sunday to NY for treatment. In the meantime to try to keep the blood levels where they need to be Eli has been receiving a shot daily which he hates and I hate giving but have no choice.

Please daven that all should stay ok as far as Elimelech Ben Basya blood levels and that IYH we should be able to go to NY asap and come home asap.

Special Announcement

For the last few months a group of our close friends have been arranging to join Chai Lifelines marathon taking place in Florida on 2/2/14. They have already 12+ people just on the “team Eli” group along the many others that run for Chai Lifeline. To do so every runner goes through MONTHS of rigorous training which they have all began doing already. This is one of the bigger fundraisers for Chai Lifeline who anyone who has ever needed their services knows how vital they are when a family member is going through a illness. And for those who BH haven’t had a sick family member and beezrat hashem will never have should know that they are simply a lifeline. Always there and always thinking about what they can do to take their chesed to the next level.

Our family will forever be makir tov to them for what they have done for us and continue to do. Every runner that signs up is essentially pledging $3600 to join the CL team. Aside from the training they do they must also raise the $$. On the link below there is a team Eli page which shows how much together the team has raised but you can click on each persons name and donate directly to their pledge. We beezrat hashem hope as a family to be there together with Eli who will be pushed in a wheelchair/stroller by one of the runners during the marathon

I look at this as a insurance plan that hopefully your donation should chas vshalom never be used towards your family or anyone you know but for us its the ultimate lifeline. Again I ask that anyone that can should please donate whatever they can “every dollar counts”. If you can donate $5 great if you can do more even better. If you can fully sponsor a runner would be amazing. There is also nothing wrong with a runner more then fulfilling their pledges for this great and worthy cause.

Anyone wishing to join the team should please email Ayalaback@gmail.com and anyone wishing to donate should please go to this link: http://www.teamlifeline.org/myteam.php?myid=88.

All I can say simply is “tizku lmitzvos”

The Gradons