12/8/14

There isn’t much to update other then Eli remains in CHLA for no real reason other then what they call monitoring and what we call torture. They say one thing and do another. To put it mildly this last stay in CHLA has been a living hell for many reasons but the main one is the lack of care that Eli has received.

We know the system a little to well by now and like I mentioned criteria to be discharged after an infection is no fever for 24 hours, 3 negative blood cultures and to start having a blood count. ALL 3 of those were reached Sunday evening yet they decided to keep us another day with the regular threat that if you just pick yourself up and leave we report you to DCFS.

The good news is that Eli was asking and actually ate some real food today which he hasn’t done in a while and was up for fresh air for the first time since getting here on Wed. We hope to wake up to seeing Eli continuing to gain strength and hopefully blood counts and look forward to going home beezrat hashem.

Please continue to keep Elimelech Ben Basya in all your tefilos.

2 thoughts on “12/8/14”

Chaim December 9, 2014 at 3:29 pm

Hatzlocha getting out of CHLA and hone ASAP. The RCCS video of Eli was very moving, to say the least.
Refuah Shelaima and all the very best,
Chaim
gila December 9, 2014 at 5:22 pm

Hashem, get Eli home and well !!!!!!! Eli, we love you and miss you! You were a star on the video, and we love watching you sing with 8th day and smile your beautiful smile. Love the Sacks family

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Special Announcement

For the last few months a group of our close friends have been arranging to join Chai Lifelines marathon taking place in Florida on 2/2/14. They have already 12+ people just on the “team Eli” group along the many others that run for Chai Lifeline. To do so every runner goes through MONTHS of rigorous training which they have all began doing already. This is one of the bigger fundraisers for Chai Lifeline who anyone who has ever needed their services knows how vital they are when a family member is going through a illness. And for those who BH haven’t had a sick family member and beezrat hashem will never have should know that they are simply a lifeline. Always there and always thinking about what they can do to take their chesed to the next level.

Our family will forever be makir tov to them for what they have done for us and continue to do. Every runner that signs up is essentially pledging $3600 to join the CL team. Aside from the training they do they must also raise the $$. On the link below there is a team Eli page which shows how much together the team has raised but you can click on each persons name and donate directly to their pledge. We beezrat hashem hope as a family to be there together with Eli who will be pushed in a wheelchair/stroller by one of the runners during the marathon

I look at this as a insurance plan that hopefully your donation should chas vshalom never be used towards your family or anyone you know but for us its the ultimate lifeline. Again I ask that anyone that can should please donate whatever they can “every dollar counts”. If you can donate $5 great if you can do more even better. If you can fully sponsor a runner would be amazing. There is also nothing wrong with a runner more then fulfilling their pledges for this great and worthy cause.

Anyone wishing to join the team should please email Ayalaback@gmail.com and anyone wishing to donate should please go to this link: http://www.teamlifeline.org/myteam.php?myid=88.

All I can say simply is “tizku lmitzvos”

The Gradons