5/5/14

Today was a rather long day but IYH successful. It started with a 9AM check in at CHLA and then with a few check ups, blood and urine tests etc. and then finally with stem cell transplant at 11:45AM which only actually takes a few minutes but needs to be followed by 4 hours of hydration. When that was done Eli needed a blood transfusion and that takes a few hours so by the time we left CHLA it was after 6PM. Eli rightfully so came home drained and exhausted but BH we got done what will beezrat Hashem jump start the blood counts.

Every few days the nurse will come to our house to draw blood to see if or what Eli may need as we help him regain his strength. The next scheduled visit isnt exactly scheduled but it is a MRI and a MIBG scan hopefully in about 10 days or 2 weeks. Based on those results the DR will decide when and if we should go to NY for further treatment.

Please continue as always having Elimelech Ben Basya in all your tefilos.