The last few days haven’t been at all what we had been experiencing for the last while. For a few weeks Eli was up and about and even made it to school a few times for short periods of time. He hasn’t needed any blood or platelet transfusions in a few weeks and his platelet count was climbing very slwoly but going in the right direction. 

Since Monday Eli has been very weak and then starting Tuesday morning Eli started having pain. The pain got very bad Tuesday evening and we went to CHLA ER where for some odd reason didn’t feel Eli needed to be admitted even though he had a low fever. After being there from 11PM to 5AM we went home only to have Eli wake up with 102 fever and more severe pain. They now have Eli on full time pain medication and IV drips and we are hoping this will do the trick. 

Eli will be admitted once they get him a bed and it will be a few days probably until they have his pain under control and some sort of beezrat hashem treatment plan. We have been down this road before and nothing will change as we continue doing anything and everything until we IYH reach our goal of a refua shelayma bkarov. 

In the meantime please have Elimelech Ben Basya and the unfortunate endless list of cholim in all your tefilos. ‎
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BH there hasn’t been much to update lately and that’s how we like it. The kids had mid winter vacation and we took advantage spending time together with Eli and getting out on some day trips. BAH Eli was up to going one day on rides and the other day we went to a hotel for the day that had an indoor pool which Eli used for many hours without being wrapped in shrink wrap as he currently doesn’t have a line accessed at all times.

This morning the nurse came and drew labs and late this evening we got the results that BH Eli does not need any transfusions and they will check again on Monday to make sure things stay that way. Elis platelets are on the rise but only slightly. We are hoping that next week things will be higher so that in about 10 days they will be able to continue with some treatments. We have a DDR appt at some point next week to further discuss what and when.

Please as always continue having Elimelech Ben Basya in all your tefilos along with the cholim list that unfortunately grew again this week. We added a local child with a brain tumor Rochel Emunah Bas Rivka Davoria Brina. Also please always daven for Chaya Mushka Bas Hadassa Shayna, Gittel Bas Shoshana Rochel, Golda Bas Miriam, Yonasan Rafael Ben Baila, Avrohom Ben Leah, Hillel Sholom Shachneh Ben Rivka, Malka Braindel Bas Shaina Shifra. Bsoch Shaar choley yisroel