7/31/14

The insanity doesn’t seem to have a dull moment. This morning one of Elis lines didn’t flush but since he had a lab appointment they dealt with it there. Eli needed another platelet transfusion today and then they had to TPA his line which means put some stuff in his line to un clog it and BH that worked and did the trick and his line is once again working.

The DR yesterday was fully convinced that at todays labs it would show that Eli is ready to go on Sunday and have the next round of MIBG therapy. Unfortunately he was wrong by the slightest margin and even though it is technically safe for them to go ahead and do the treatment its the FDA that won’t allow it. Therefore the DR will be putting in a request that we hope and he’s pretty sure will be OKd by the FDA to go ahead and do the treatment. The problem is time is of essence and the FDA approval will probably take a few days. In the meantime we will hope that the problem will fix itself and we will IYH continue to do labs so that on the possibility that its ok then we won’t need any special approvals.

So for now it is likely that the MIBG therapy will be pushed off again by a few days. The hope is that it won’t be pushed off any more then that and like Eli always says “move on with life”.

For now we just need to hope and pray that Elimelech Ben Basya gets the blood levels we need him to be at and that we can continue with the treatment in hopes of reaching the ultimate goal of a refua shelayma BKAROV.

Special Announcement

For the last few months a group of our close friends have been arranging to join Chai Lifelines marathon taking place in Florida on 2/2/14. They have already 12+ people just on the “team Eli” group along the many others that run for Chai Lifeline. To do so every runner goes through MONTHS of rigorous training which they have all began doing already. This is one of the bigger fundraisers for Chai Lifeline who anyone who has ever needed their services knows how vital they are when a family member is going through a illness. And for those who BH haven’t had a sick family member and beezrat hashem will never have should know that they are simply a lifeline. Always there and always thinking about what they can do to take their chesed to the next level.

Our family will forever be makir tov to them for what they have done for us and continue to do. Every runner that signs up is essentially pledging $3600 to join the CL team. Aside from the training they do they must also raise the $$. On the link below there is a team Eli page which shows how much together the team has raised but you can click on each persons name and donate directly to their pledge. We beezrat hashem hope as a family to be there together with Eli who will be pushed in a wheelchair/stroller by one of the runners during the marathon

I look at this as a insurance plan that hopefully your donation should chas vshalom never be used towards your family or anyone you know but for us its the ultimate lifeline. Again I ask that anyone that can should please donate whatever they can “every dollar counts”. If you can donate $5 great if you can do more even better. If you can fully sponsor a runner would be amazing. There is also nothing wrong with a runner more then fulfilling their pledges for this great and worthy cause.

Anyone wishing to join the team should please email Ayalaback@gmail.com and anyone wishing to donate should please go to this link: http://www.teamlifeline.org/myteam.php?myid=88.

All I can say simply is “tizku lmitzvos”

The Gradons