Although we had a pretty good day overall it was extremely long. It started at 8:30AM in CHLA for a scheduled CT scan which for whatever reason they didn’t have the contrast drink prepared and that took a extra hour. Then we got word that Elis blood counts were still very low and he need another blood transfusion so we didn’t waste time and for the 2 hour period that Eli needed to be drinking the horrible contrast drink we went to the infusion center to make sure they have his blood ready so that after his CT scan they can do it right away. Immediately after the CT scan which was already 12:15PM we went to the infusion center and they started the transfusion the problem was the nurse had no clue as to what she was doing. She had the speed that the blood should come out on extremely low and instead of the actual transfusion taking 2 hours it took 3 hours.

Eli was not very happy with all this and voiced very loudly and often his displeasure in the day. I had to bribe him with a new game which was the only thing that calmed him down which we got on his way home at 4PM. The results of the CT scan for some reason will not be given to us until Thursday as our DR isn’t there and the other DR claims to be booked up. For those that have tried contacting Eli on his cell phone for the last while sorry but it was broken and finally replaced again today and if you do text him please say who you are as he lost all his contact info.

BH we seem to be gaining ground with Elis appetite and strength and we hope and daven that beezrat hashem this will continue. This Thursday erev Rosh Chodesh Sivan is a day for tefila and anyone that can should make it to a tefilas Yom Kippur Koton bzchus Elimelech Ben Basya, Binyomin Chaim Ben Faigy Sarah, Chana Tova Bas Esther Shoshana Bsoch shaar choley yisroel.

Bli ayin hora we need a lot more days of significant improvement like we had today. While there is still a lot of room for a lot more improvement Eli had pain but it was BH significantly less then the last few days and he finally ate a large amount of food. While the last few days and weeks have been a challenge to put it mildly we are counting on many more days of improvement with at least this much improvement.

On Tuesday morning the morning will be spent in CHLA drinking a very sour contrast so that Elis insides will be clearer on the CT scan. Hopefully this and the many scans ahead will all be with good results. We don’t have the full schedule and we probably won’t and will only receive it as time passes but over the next few weeks BH don’t have any planned hospitalization and beezrat hashem it will stay that way. We hope that this is the start of many many good and better days for Eli.

Please continue to keep Elimelech Ben Basya in all your tefilos so that we can help him continue fighting and continue gaining as much strength as possible ahead of the further planned treatments.

There was not much change in the last day or so for Eli. He has a lot of pain in his throat, jaws and mouth and some sores on his tongue and to say the least he’s not very happy or comfortable. He has been taking medication to help subside the pain and it helps but only to a certain point. This is a result of this past round of chemo and although we were expecting it we thought that since it hadn’t happened yet it won’t happen. Unfortunately Eli wasn’t so lucky and he is having the side effects now. There wasn’t much we were able to do to relax him other then medication and ices and fresh air.
This week on Tuesday beezrat hashem they will start a long batch of testing so that we can hopefully have a good idea on how Eli is doing and if the chemo, surgery and everything we have done and he has gone thru is doing what it should. While the tumor was taken out during surgery we hope and daven that it hasn’t started to grow again. Aside from that they have to see how its affecting the cancer in his bones to see if it has gone away or started to disappear etc.

We look forward and daven non stop that Elimelech Ben Basya will not have any more pain. Also that the next few weeks with all the scans he will be having that all results should be as good if not better then what they hope for so that we can help Eli continue fighting this machla.

We didn’t get as much time to relax as we would of liked over shabos due to Eli not sleeping to well and having a lot of pain in his mouth (a side effect from the chemo he got a week ago). There were few things he was able to eat but was mostly eating a lot of freeze pops. One good thing was that he had more strength then he has had lately and that’s probably a result of the blood transfusion he got on Friday. It seems for now that Eli can’t have both an appetite and strength at the same time. We hope that trend will end as soon and as quick as possible.

Eli of course insisted on going to shul Shabos morning and although it takes him a while to get himself physically together in the morning we finally did get there and he even walked a decent amount. We are hoping Eli has a good nights sleep and wakes up with no pain and full of strength so that we can have a full week of working him back to full strength.

As always Elimelech Ben Basya can use our tefilos and they are a big part of what’s getting us and Eli thru these tough few weeks and months and we hope to have a much better and relaxed week. A GUT VOCH

We were in CHLA at 8:45AM for a scheduled blood transfusion which took a little bit longer then it should of but that’s fine. We were home at 2:30 and Eli immediately started what seemed to be like he was feeling a lot better. He asked for food and actually ate it and then asked for more food and ate that as well. He ate today more then he ate almost all week combined. Beezrat hashem that will continue as the scale today showed what we already knew from seeing Eli which is that he is the skinniest he has ever been.

We hope that the blood transfusion gives him the much needed boost in strength and appetite and hopefully this coming week will be a lot better then the last few. The good news is that BH he is drinking and not chas vshalom dehydrated and does not need IV.

Elimelech Ben Baysa needs all of the brochos that shabos comes with to help him get thru these difficult days. We hope his mouth sores go away asap and that his appetite and strength come back more then ever. GUT SHABOS

Elis day did not consist of much because he wasn’t up to doing much. He woke up later then usual and didn’t have much strength to leave bed other then to go outside for the few walks we took together. His home health nurse came at about noon to draw his blood and as expected his blood counts were pretty low so we will be going to CHLA as soon as Eli wakes up for a blood transfusion. Early in the afternoon Elis Rebbi Rabbi Jacobs came to try to lift Elis spirits and he definitely did BH.

There are some side effects which beezrat hashem will not get any worse that are now hitting Eli from this past round of chemo such as pain in his jaw and some sores in his mouth. We are keeping Eli on pain pills which he only allows us to give him once he’s really in pain and on nausea medication. We are hoping that the boost that hopefully the blood transfusion will give him will help him gain some much needed strength, weight and his appetite as well.

Please continue to daven on Elimelech Ben Basyas behalf that IYH all will go smoothly in the hospital on Friday morning and that the blood transfusion should do only what its meant to. Hopefully all will go easy and smooth and we should be in and out in about 5 hours.

No news is good news and that’s how the day mostly went. Eli is beezrat hashem still very slowly but somewhat noticeably gaining some strength. His weight department can use a nice boost but one thing at a time for now. Hopefully when he gains more strength his appetite will also come back.

Eli didn’t do much today other then relax and go for a few walks and eat and that’s how we hope the next few days goes until he is more back to himself. The home health nurse will be here on Thursday and although it is very common for Elis blood counts to be low after chemo we hope they won’t be so we can avoid needing a blood transfusion.

Hopefully the good days for Elimelech Ben Basya will continue coming and with only good news. Please continue to daven on Elis behalf. Tizku lmitzvos

Bli ayin hora Eli definitely showed some improvement today and we hope its the start of a new trend. He walked further then he’s walked in a while and didn’t lose his breath to quickly either. While he has a long way to go we are extremely happy with baby steps as long as they are headed in the right direction which today showed signs that way. He also felt better about himself and got out a little bit more and ate more to.

We hope we are getting closer and headed in the direction of a stronger, healthier and heavier Eli IYH over the next few days and weeks as we prepare for the next stage in the treatment. On Thursday the home health nurse will come to our home and draw Elis blood which will let us know how his blood counts are and if he will need a blood or platelet transfusion. Other then that hopefully beezrat hashem Eli has nothing else planned for about a week and we are not complaining.

Please as always continue to daven for Elimelech Ben Basya and all cholim. I haven’t really been good about thanking individuals lately for their tefilos, kabalos and many other personal things people have done for Eli and our family’s behalf lately and we really appreciate it and it means the world to us. We look forward to besuros tovos only.