We were at CHLA at 9AM for MIBG/CT scan and by the time that was over we headed for transfusions followed by a DR appt for the scan results. Unfortunately we have been down this road before but the scans are far from good. There has been a lot of spreading but BH nothing in any vital organs. 

As a result‎ we will be taking drastic attempts at anything and everything we can do to continue this fight. IYH this week (which means a very short break from last chemo) Eli will begin a different intense type of chemo as a 3 day cycle. We will hope that will be more aggressive then the cancer and help ahead try to get ahead. Because of the fact that the disease is aggressive and not allowing for Elis blood or platelet counts to rise Eli will need possibly daily transfusions. 

We have been down this road before and will continue dealing with it as we have until now with pure dedication and nothing less then the best for Eli. As I have asked before I will always ask don’t get all touchy with the huge, kisses, shoulder rubs and what not that people think is a help. No one in the right mond in this situation wants to be nebached and I dare you to try it here. We are adults dealing with a sick child and will move the world to get Eli the care he needs. 

Sorry for the upsetting news but as always we have the “never give up attitude” and asking for everyone to continue daven for Elimelech Ben Basya bsoch shaar choley yisroel. 

I will as always update this site as often as I have an update and whatever is written here is the truth, most current and only information we are offering. 

A GUT SHABOS