Today was one of the longer days we have had in a long time. We were meant to fly on a private jet but that got cancelled and thanks to 2 very special people one of whom doesn’t even know us arranged our flight to NY on American Airlines. We landed at 8PM and were at MSKCC before 9PM. As always everything takes forever there and their policies make no sense but we need to run with it. There is a bed waiting for Eli all day but they insisted that first he go to urgent care and have his labs checked. Of course his platelets weren’t where they wanted it to be so he needed a transfusion at the transfusion center. Then they added that we need to wait an hour after the transfusion was complete to check again to make sure his platelets were where they need them to be.

It was finally after 1:00 AM 4+ hours after getting to the hospital that we got to our room and got a unpleasant surprise. The room has no parent bed just a reclining chair that doesn’t recline which is what I’ll be calling my bed for the next few days (it should be my worst problem). The room on the pediatric floor where they can do the MIBG therapy is already taken so we are on the adult floor 5th floor where they have the same type of room to facilitate the radiation levels.

Please daven that Elimelech Ben Basya should have a simple easy and pain free next few days and most of all that the treatment should do all that its meant to do and more as we continue on the road to IYH a refua shelayma bkarov.