6/9/14

The morning didn’t get off to a good start. At 6AM Eli woke me that he feels wet so after checking what was going on I noticed that his line completely separated itself from his body and he was mildly bleeding as a result. So off to the ER at MSKCC where after consulting for a few hours with DRs and surgeons they decided he needs a new line. A new line requires general anesthesia and a wait until they had space in the OR. Finally at 12:30 they wheeled Eli in and it was all done less then 20 minutes later. They then sent us downstairs to have an X-Ray done to make sure the line was placed in the correct place which BH it was.

Our 9:30AM appointment obviously didn’t happen with all this going on but they told me the DR would be seeing us and so we waited from 1-4PM only then to be told the DR has an emergency and won’t see us until Tuesday. So for now we are scheduled for 1PM on Tuesday to see the DR and to check the many lab and urine results that were taken today to make sure Elis body is ready for the MIBG treatment. My understanding is that he will have another procedure on Tuesday to check his bone marrow and to put a catheter so that they can continue monitoring Elis urine levels during the MIBG treatment to check the radiation levels in his body. The actual MIBG treatment will take place a day after this is done so if Tuesday goes as planned we will be admitted and then the actual MIBG therapy will take place on Wednesday and then from there 2-4 days later based on the radiation levels is when beezrat hashem he will be able to leave the hospital.

Leaving the hospital isn’t a ticket home his radiation levels will still be to high to fly and they will continue monitoring it for a few days after until we IYH get the all clear to fly back to LA.

The good news is after going back to our 5 STAR accommodations at our cousins house which has become our home away from home and resting after today’s long day Eli decided that its time to eat steak at a nice steak house so that’s where we headed and now BH Eli is back to himself for the most part and we hope he gets a much needed good night sleep.

Please continue having Elimelech Ben Basya in all your tefilos and we are hoping for a much less drama filled day on Tuesday and for the treatment to go ahead as planned and more so whenever it does take place to do what we hope for and to give Eli what he deserves a refua shelayma BKAROV.