6/27/14

There hasn’t been much to update and that’s the reason there hasn’t been an update. Eli BH has been at home since getting back from NY and like we were told by the DRs in NY that the MIBG therapy would hit as time goes on it seems like its doing just that. Eli hasn’t been physically able to do much and is pretty weak but BH in a good mood. We did get out a few times to try going together as a family for an outing but it didn’t last very long but enjoyed the little time we had.
Elis blood that was drawn on Thursday had low hemoglobin and therefore we were in CHLA today for a blood transfusion. Its a long slow 4-6 hour process but beezrat hashem it will do what its meant to do.

Other then that we are trying to get the schedule from MSKCC which as it stands now has us in NY from 7/15-27 for scans which we daven daily will show a good change so that they can repeat the MIBG therapy after the scans. Scans are scheduled for 7/16,17,18 and in patient IYH 7/21-25 and then back to LA on 7/27 in a perfect world.

Please continue as always having Elimelech Ben Basya bsoch shaar choley yisroel in all your tefilos. A GUT SHABOS

Special Announcement

For the last few months a group of our close friends have been arranging to join Chai Lifelines marathon taking place in Florida on 2/2/14. They have already 12+ people just on the “team Eli” group along the many others that run for Chai Lifeline. To do so every runner goes through MONTHS of rigorous training which they have all began doing already. This is one of the bigger fundraisers for Chai Lifeline who anyone who has ever needed their services knows how vital they are when a family member is going through a illness. And for those who BH haven’t had a sick family member and beezrat hashem will never have should know that they are simply a lifeline. Always there and always thinking about what they can do to take their chesed to the next level.

Our family will forever be makir tov to them for what they have done for us and continue to do. Every runner that signs up is essentially pledging $3600 to join the CL team. Aside from the training they do they must also raise the $$. On the link below there is a team Eli page which shows how much together the team has raised but you can click on each persons name and donate directly to their pledge. We beezrat hashem hope as a family to be there together with Eli who will be pushed in a wheelchair/stroller by one of the runners during the marathon

I look at this as a insurance plan that hopefully your donation should chas vshalom never be used towards your family or anyone you know but for us its the ultimate lifeline. Again I ask that anyone that can should please donate whatever they can “every dollar counts”. If you can donate $5 great if you can do more even better. If you can fully sponsor a runner would be amazing. There is also nothing wrong with a runner more then fulfilling their pledges for this great and worthy cause.

Anyone wishing to join the team should please email Ayalaback@gmail.com and anyone wishing to donate should please go to this link: http://www.teamlifeline.org/myteam.php?myid=88.

All I can say simply is “tizku lmitzvos”

The Gradons