We are looking forward to leaving NY on Wed and head back home and try to get back to a little normalcy as a family. Its been a long and draining 11+ days but BH we accomplished what we came here for. Today’s was especially draining as Elis blood and platelet counts have already begun to drop pretty significantly. We had a 10 minute MIBG scan this AM and were about to leave MSKCC when the nurse told us to wait for a few minutes because the DR needed to see Eli. Well that few minutes turned into literally over 3 boring hours of waiting for a 5 minute consult where we were told nothing but per the protocol the DR needed to see Eli.

The good news is that Eli is excited and looking forward to get home and even more so because thru this amazing organization called Corporate Angels they have arranged to fly us home on a private jet to Van Nuys airport. YAY!! Thursday it is back to CHLA for most probably a platelet and or blood transfusions which they think he may need weekly for the next month or so and even also possibly stem cells to keep his blood counts above zero as a result of this MIBG therapy he just got.

Eli got to see all of our immediate family, cousins, uncles, aunts and many friends over this trip and he and we really appreciated every ones going out of their way for us and for making Eli feel special. Once again a huge thank you to our home away from home Ruvy and Rivkeleh and family for the most amazing hospitality. Also to my brother and sister in law in Lakewood. To zaidy and bubby Ribiat in Lakewood and to all our siblings in Lakewood, Monsey and Brooklyn who arranged so much to make sure everyone got to see Eli. It was very special and very much appreciated. IYH looking forward the next time to see everyone only for Simchas.

Please as always continue to have Elimelech Ben Basya bsoch shaar choley yisroel in all your tefilos.