Eli had a complete good turn around over Shabos. Once home from the scan Friday afternoon he was more in the mood of eating and the main news was that he was able to hold it down and BAH that continues. Friday night he sat all the meal and made it to a few Shalom Zachors as well as going to shul over Shabos. Sunday was a nice outing at a Chai Lifeline picnic/BBQ. 
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Monday morning was back at CHLA for what was meant to be a lab check as well as a platelet transfusion. For some reason the lab was backed up and instead of the normal 40-60 minutes wait for results it took 2.5 hours to find out that BH his blood and platelets were fine but once again his potasium this time was dangerously low. So after getting the potasium transfusion which runs over a 2 hour IV they sent us down to get an X-Ray to make sure there’s nothing obvious in Eli’s belly causing it. Then it was back to the Infusion center to recheck the potasium levels which definitely did rise but isn’t where they want it to be. So instead of what should of been a 2-3 hour visit was a 7+ hour ordeal.  IYH Tuesday morning we will be back in CHLA for another pottasium transfusion and also to see if the X-Ray or stool test yield any clue as to why Eli’s pottasium keep dropping. 
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Other then that the good news was that in his good mood and holding down food even though we have a very long road to be at a weight that would make us happy Eli did gain nearly a pound over the weekend and beezrat hashem that will continue in the right direction. We do have a GI appointment Wed early morning to set up TPN in case they do feel he needs that but we are hoping that won’t be the case. 
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Please as always continue having Elimelech Ben Basya bsoch shaar choley yisroel in all your tefilos. ‎
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