Although we had a pretty good day overall it was extremely long. It started at 8:30AM in CHLA for a scheduled CT scan which for whatever reason they didn’t have the contrast drink prepared and that took a extra hour. Then we got word that Elis blood counts were still very low and he need another blood transfusion so we didn’t waste time and for the 2 hour period that Eli needed to be drinking the horrible contrast drink we went to the infusion center to make sure they have his blood ready so that after his CT scan they can do it right away. Immediately after the CT scan which was already 12:15PM we went to the infusion center and they started the transfusion the problem was the nurse had no clue as to what she was doing. She had the speed that the blood should come out on extremely low and instead of the actual transfusion taking 2 hours it took 3 hours.
Eli was not very happy with all this and voiced very loudly and often his displeasure in the day. I had to bribe him with a new game which was the only thing that calmed him down which we got on his way home at 4PM. The results of the CT scan for some reason will not be given to us until Thursday as our DR isn’t there and the other DR claims to be booked up. For those that have tried contacting Eli on his cell phone for the last while sorry but it was broken and finally replaced again today and if you do text him please say who you are as he lost all his contact info.
BH we seem to be gaining ground with Elis appetite and strength and we hope and daven that beezrat hashem this will continue. This Thursday erev Rosh Chodesh Sivan is a day for tefila and anyone that can should make it to a tefilas Yom Kippur Koton bzchus Elimelech Ben Basya, Binyomin Chaim Ben Faigy Sarah, Chana Tova Bas Esther Shoshana Bsoch shaar choley yisroel.