These last 24+ hours have been extremely frustrating with the DR’S and pain team each making up stories and constant lies about the plan. After setting them straight with a few intense stress filled meetings they of course couldn’t accept guilt or fault but realized how they have been messing around and causing Eli to be here potentially longer then he should with no explanation.
After telling us that Eli will be on methadone and will take 3 days to get him on it and it’s a once a day pill they came in this morning saying we never said that and it’s a 3X a day liquid oral medication. I completely lost it on them and didn’t allow for it and got them to realize that Oxy and Morphine pain medication has worked until now so why change.
To put a long story short they moved the chemo from 10PM to 6PM and IYH as soon as it’s over like the second it’s over we will be out of here. This has been a beyond stressful week seeing Eli in so much pain and having to literally be there every second of every day to be on top of their constant stupidity. Elis blood counts are expected to drop over the next while with constant blood and platelet transfusions needed to keep up with that but beezrat hashem we will be home for the most part so we can have a semi normal life.
From day 1 Rabbi Heshy Ten along with his staff and many other organizations as well have been there for us and we never properly thank them. Today we need to single out Rabbi Ten and Bikur Cholim for their non stop daily commitment to Eli, his health and our family. On days like today the only way we could possibly be legally going home was with their help with connections within CHLA getting things done and always with no fan fare and we will always truly be indebted to them for the many things they do for us. THANK YOU
Today we had a few special visitors which meant a lot to us and are always appreciated. Our cousin Rivkeleh Hellman who is our home away from home in NYC flew in to visit us. Thank you for the many times we used your house and to Ruvy for letting her come and watch the kids so she can help lift Eli’s and our spirits. Our Rov Rabbi Langer also came special today which was very special and then there were 2 regulars who would kill me if I wrote their names but are always available and always visiting us and here for us during the hardest times.
On Wed Erev Rosh Chodesh Adar for both men and women in our Shul Sharei Torah located at 334 N La Brea Ave LA CA 90036 there will be mincha with Yom Kippur Koton at 5:00PM bzchus Elimelech Ben Basya and all local cholim. This is the one zchus R’ Chaim Kanievsky has said multiple times to do lrefua shelayma.
