2/16/15

It’s been another very long day here at CHLA but we are kind of used to it. Eli is BH doing better in the pain department and isn’t pushing the morphine as often as he was and his dose is lower. Most of the day Eli didn’t need the oxygen in his nose. However his cough is very bothersome and it doesn’t seem to be getting any better and the DR’S don’t seem to have a decent explanation. The next problem is the hemoglobin and platelets both dramatically dropped and required Eli to get another transfusion of both of them this to they don’t have a good explanation for.

We have been asking since Saturday to start transferring the IV pain meds to oral meds so that when Eli can finally leave all will be set but for some reason it kept getting pushed back. Finally this evening the DR came in to tell me that the pain management team decided to put Eli on oral mathadone for the pain but it will take 3 days to get the dosage right and Eli will need to remain in CHLA until then. After trying to understand why he can’t continue on the oral pain meds Eli has been on until now we finally agreed only to be waiting 8+ hours later for that to actually happen and start.

It’s been a frustrating day but on other hand somewhat easier seeing Eli in considerable less pain. We hope that these issues will be worked out and hopefully we can plan a discharge on Wed if they get a move on things.

Please have Elimelech Ben Basya and all cholim in all your tefilos. I will have more info on Tuesday for the Yom Kipur Koton planned IYH for Wed at Sharei Torah bzchus Eli and all local cholim.

Special Announcement

For the last few months a group of our close friends have been arranging to join Chai Lifelines marathon taking place in Florida on 2/2/14. They have already 12+ people just on the “team Eli” group along the many others that run for Chai Lifeline. To do so every runner goes through MONTHS of rigorous training which they have all began doing already. This is one of the bigger fundraisers for Chai Lifeline who anyone who has ever needed their services knows how vital they are when a family member is going through a illness. And for those who BH haven’t had a sick family member and beezrat hashem will never have should know that they are simply a lifeline. Always there and always thinking about what they can do to take their chesed to the next level.

Our family will forever be makir tov to them for what they have done for us and continue to do. Every runner that signs up is essentially pledging $3600 to join the CL team. Aside from the training they do they must also raise the $$. On the link below there is a team Eli page which shows how much together the team has raised but you can click on each persons name and donate directly to their pledge. We beezrat hashem hope as a family to be there together with Eli who will be pushed in a wheelchair/stroller by one of the runners during the marathon

I look at this as a insurance plan that hopefully your donation should chas vshalom never be used towards your family or anyone you know but for us its the ultimate lifeline. Again I ask that anyone that can should please donate whatever they can “every dollar counts”. If you can donate $5 great if you can do more even better. If you can fully sponsor a runner would be amazing. There is also nothing wrong with a runner more then fulfilling their pledges for this great and worthy cause.

Anyone wishing to join the team should please email Ayalaback@gmail.com and anyone wishing to donate should please go to this link: http://www.teamlifeline.org/myteam.php?myid=88.

All I can say simply is “tizku lmitzvos”

The Gradons