The last 2 days have been uneventful for the most part and we aint complaining. Eli remains on 2 antibiotics as they continue trying to determine which would be the better one for the infection he has. We hope by the time Eli is discharged they have it figured out so that we can do just one at home.

We had a very nice amount of visitors which we always appreciate and enjoy and today one of them (Achashvayrosh as we call him) brought lunch for the whole staff and they also appreciated it. THANK YOU

The plan is for 7:30AM to be wheeled into the OR to put in a port. I’m not familiar fully yet with it but my understanding is that its all completely under the skin and when it needs to be used its a very easy process. This allows Eli to finally be able to take showers and get his whole body wet which he hasn’t been able to do for 2 years!! It also is IYH much less prone to infections. Once its in and Eli is able to hold his own after the surgery we will then go back to our room and be shown how to use it at home. Hopefully soon after that Eli should be on his way home after a long 5+ days in CHLA.

Please daven that this new line and procedure should go well for Elimelech Ben Basya and that Eli and all cholim should be zoche to see a refua shelayma bkarov.

Shabos morning at 7AM Eli was wheeled to the OR floor and was wheeled into the OR at 7:30. By 8:30 he was awake with his line out finally BH. By 11AM Eli was back to himself eating and cracking jokes and feeling very well. During the surgery they put in his arm a temporary IV line which didn’t work so they had to put it in a different place and it wasn’t fun but as usual Eli got over it pretty quickly.

We had a 2 “uncles” for the Friday night meal and we were all entertained by Eli for the entire time. Today we had another “uncle” come for the morning and then Rabbi Ten early afternoon and then Uncle Reuven and a few friends late in the afternoon and we appreciated everyone of our guests that walked the long walk to visit.

The plan now is to keep Eli in CHLA on IV antibiotics which BAH have so far yielded 2 days of negative cultures since the initial positive culture and beezrat hashem that will only continue. IYH Tuesday morning once again Eli will be back in the OR to have a port surgically inserted. We hope that shortly after that Eli will be discharged.

Please as always continue having Elimelech Ben Basya and all cholim in your tefilos. A GUT VOCH

At 4AM we got the call that we didn’t want to get. “Hello this is the DR from CHLA Elis labs have come back positive for another bacteria infection and he needs to come back ASAP”. We got back right away and have been informed we will be here for a good few days. They haven’t yet figured out what type exactly the infection is and therefore aren’t sure which antibiotics will be best for it. Also since he keeps getting infections they are assuming its from his central line and will need to surgically remove it.

BAH Eli doesn’t need his central line anymore because as of a few days ago we stopped giving him TPN which was the main reason to keep in the line he has now. Once they remove the line he has now he will have on his arm a temporary IV for about 72 hours at which point he will need another surgery to put in a port which is under the skin and much less prone to infections. The reason they need to do this in 2 separate procedures is because since he has an infection now they won’t put the port into a contaminated area and have the same problems again.

We hope in the next 24 hours Eli will have the removal surgery so that we can try moving this process along and start the healing from this infection. The good news is BH Eli has had no fever and his blood pressure has been good to.

Hoping that this is nothing more then a small bump in the road and that we will soon see Elimelech Ben Basya have a refua shelayma. A GUT SHABOS

There hasn’t been much to update other then Eli has been doing BAH great. He has been in school full time lately and is catching up on some things and on most things he is BH way above his class.

On Tuesday a generous donor thru Bikur Cholim gave Eli 4 tickets to the Laker game which he took 2 of his classmates with and thoroughly had a great night in very good seats (nothing less then that for THE KING)

Today Eli had a scheduled DR visit to see how things are going with the chemo pills and to check his blood counts. Before the scheduled time arrived Eli starting coming down with a low grade fever at 11AM and we immediately took him to the hospital. As lately has gone Elis blood pressure started dropping so they were keeping a very close eye on him but BH he had no fever and the BP stabilized. They then took blood cultures and gave antibiotics as a precaution. After 6 hours in the ER and all was ok we were BH discharged.

We hope and daven that all stays and continues only in the right direction and that the blood cultures which take a day or 2 sometimes to grow bacteria should always be negative. In the meantime everything is status quo and IYH in the morning Eli will feel fine and be back in school.

Please as always continue having Elimelech Ben Basya and our very close friend Chaya Mushka Bas Haddasa Shayna in all your tefilos. We look forward to seeing them and all cholim get what they need and deserve a refua shelayma.