On Thursday evening they finally started giving Eli pain medication orally instead of thru IV in preparation of going home on Friday. Over the night Eli spiked a few fevers some as high as 103 but the cultures kept coming back negative. I insisted all week that I would be leaving with Eli on Friday no matter what and I put major pressure on them to make that happen despite they reluctance for no good reason. BH it worked and we got home Friday afternoon at 4PM.

Eli is on a lot of pain medication but since getting home he has finally started eating some food for the first time in a week and has also taken a few steps which wasn’t physically possible for a few days.

Unfortunately the MIBG scan wasn’t what we hoped it would be but with the extent of pain Eli was having wasn’t either surprising that the cancer in Elis bones had started regressing. As a result and we won’t have full confirmation until early morning but most probably Eli will be back in CHLA Monday AM for 5 consecutive days of outpatient chemo. We will take one round at a time and decide as we go but he needs this in order to help reduce the pain he would be in without the help if very high powered narcotics that he’s currently on every few hours.

Again while this is far from good news it isn’t unexpected and shows that Eli needs intense therapy to keep away this horrible machla. As Eli has done in the past beezrat hashem will be the case now as well and he will IYH have strength, courage and will to overcome this with little to no side effects.

In the meantime please as always continue having Elimelech Bsoch Shaar Choley Yisroel in all your tefilos. A GUT CHODESH