11/13/13

At 9:30AM Eli headed to CHLA for his MIBG scan which began on time at 10AM and took about 90 minutes. Eli was a champ and didn’t move so they can get all the images required. They then sent him upstairs for some quick blood work to see if Elis blood levels are up to par to begin accutane. On Monday the blood levels weren’t well enough so they repeated that test today. BH Elis labs are now good enough to go ahead with the accutane. The good news is that being he didn’t start on Monday and they want it completed before round 5 of Immunotheray the next round which is a back to back one won’t begin until IYH the first week of December which will allow Eli to be home for most of Chanuka.

I was hoping to receive the scan results today but wasn’t so lucky. I hope to have them sometime on Thursday. After being tied down to the table for the scan today Eli celebrated with a steak from Shilos which was a present he received from a family friend. We hope Eli will be in school for a full day on Thursday for the first time in a while.

Looking forward to continue sharing only besuros tovos for Elimelech Ben Basya.

One thought on “11/13/13”

Gila November 14, 2013 at 8:24 pm

Thank you for sharing, so we can send our positive spirit and prayers your way. Bsoros tovos.

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Special Announcement

For the last few months a group of our close friends have been arranging to join Chai Lifelines marathon taking place in Florida on 2/2/14. They have already 12+ people just on the “team Eli” group along the many others that run for Chai Lifeline. To do so every runner goes through MONTHS of rigorous training which they have all began doing already. This is one of the bigger fundraisers for Chai Lifeline who anyone who has ever needed their services knows how vital they are when a family member is going through a illness. And for those who BH haven’t had a sick family member and beezrat hashem will never have should know that they are simply a lifeline. Always there and always thinking about what they can do to take their chesed to the next level.

Our family will forever be makir tov to them for what they have done for us and continue to do. Every runner that signs up is essentially pledging $3600 to join the CL team. Aside from the training they do they must also raise the $$. On the link below there is a team Eli page which shows how much together the team has raised but you can click on each persons name and donate directly to their pledge. We beezrat hashem hope as a family to be there together with Eli who will be pushed in a wheelchair/stroller by one of the runners during the marathon

I look at this as a insurance plan that hopefully your donation should chas vshalom never be used towards your family or anyone you know but for us its the ultimate lifeline. Again I ask that anyone that can should please donate whatever they can “every dollar counts”. If you can donate $5 great if you can do more even better. If you can fully sponsor a runner would be amazing. There is also nothing wrong with a runner more then fulfilling their pledges for this great and worthy cause.

Anyone wishing to join the team should please email Ayalaback@gmail.com and anyone wishing to donate should please go to this link: http://www.teamlifeline.org/myteam.php?myid=88.

All I can say simply is “tizku lmitzvos”

The Gradons