1/11/14

We had a very nice and quiet shabos for the most part. Eli has been a little more weak then we have seen him lately but we are hoping that he just a little short on blood and hopefully a blood transfusion will do the trick. He got out quite a bit over Shabos but was easily agitated and was a lot more emotional then he’s been. Friday night also started the dreaded shots which I hate to give and he obviously hates to get but was very brave and did the first 2 already.

Sunday night IYH is check in for round 7 of immunotherapy which is the last in patient treatment on the long list of treatments Eli has gotten. The plan is to be in CHLA from Sunday night to Friday morning. The immunotherapy can be very painful but we are hoping that Eli will be lucky and will be zoche to a pain free week.

My understanding from the DR is that after this round they will hopefully begin weaning Eli of the TPN which he has been on every night for many months now and hopefully he will be able to handle and hold down solid foods. He also has one more round of the strong accutane which are pills he takes twice a day for 2 weeks after this in patient week is done. This will be followed by another full round of scans and IYH when that is done the official treatments will all be done.

Being in NY for one day this week and. seeing many old friends and rabeim and hearing from each of them what they have done and continue to do bzchus Elimelech Ben Basya and along with many local friends and many people around the world has and continues to be very heart warming and beezrat hashem we look forward to finishing all the treatments and reaching the goal of a refua shelayama.

Special Announcement

For the last few months a group of our close friends have been arranging to join Chai Lifelines marathon taking place in Florida on 2/2/14. They have already 12+ people just on the “team Eli” group along the many others that run for Chai Lifeline. To do so every runner goes through MONTHS of rigorous training which they have all began doing already. This is one of the bigger fundraisers for Chai Lifeline who anyone who has ever needed their services knows how vital they are when a family member is going through a illness. And for those who BH haven’t had a sick family member and beezrat hashem will never have should know that they are simply a lifeline. Always there and always thinking about what they can do to take their chesed to the next level.

Our family will forever be makir tov to them for what they have done for us and continue to do. Every runner that signs up is essentially pledging $3600 to join the CL team. Aside from the training they do they must also raise the $$. On the link below there is a team Eli page which shows how much together the team has raised but you can click on each persons name and donate directly to their pledge. We beezrat hashem hope as a family to be there together with Eli who will be pushed in a wheelchair/stroller by one of the runners during the marathon

I look at this as a insurance plan that hopefully your donation should chas vshalom never be used towards your family or anyone you know but for us its the ultimate lifeline. Again I ask that anyone that can should please donate whatever they can “every dollar counts”. If you can donate $5 great if you can do more even better. If you can fully sponsor a runner would be amazing. There is also nothing wrong with a runner more then fulfilling their pledges for this great and worthy cause.

Anyone wishing to join the team should please email Ayalaback@gmail.com and anyone wishing to donate should please go to this link: http://www.teamlifeline.org/myteam.php?myid=88.

All I can say simply is “tizku lmitzvos”

The Gradons