10/6/13

After a good night sleep Eli woke up and right away decided that today was the day he is going to have his cotton candy sale which he’s been waiting for to do a few months. Thanks to the many people that came and bought cotton candy Eli really appreciated it. Towards the end of his sale after being busy for a while with it he was exhausted and went for a rest.

At 8:30PM it was time to head back to CHLA. After going thru the admission process and getting to the room we realized why Eli was a little more weak then we expected him to be as his blood counts were low and he needed a blood transfusion which BH thanks to Bikur Cholim he has “yidishe” blood in a blood bank always waiting in case needed.

We are being told this week may well be the most brutal part of this entire treatment since diagnosis!!! It is a mixture of 2 different immunotherapries and it isn’t planned to be pleasant. If it goes as well as it can it is about 10 hours a day if it runs continuously if they need to turn it off or slow the rate down it will take longer. This will go on for Monday, Tuesday, Wednesday and Thursday. Once its shut Thursday night they will keep him in CHLA until Friday morning for observation. After that we will look forward to a 3 week break of immunotherapy but the first 2 weeks will be back on accutane medication again.

These next few days will be very trying for Elimelech Ben Basya and he and we will need a lot of extra davening to get thru it and we appreciate anyone that does just that.

One thought on “10/6/13”

Marcia Fine October 8, 2013 at 1:00 am

Please G-d things should go smoothly for Elimelech.. – We’ll be Davening for him.
Stuart and Marcia Fine

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Special Announcement

For the last few months a group of our close friends have been arranging to join Chai Lifelines marathon taking place in Florida on 2/2/14. They have already 12+ people just on the “team Eli” group along the many others that run for Chai Lifeline. To do so every runner goes through MONTHS of rigorous training which they have all began doing already. This is one of the bigger fundraisers for Chai Lifeline who anyone who has ever needed their services knows how vital they are when a family member is going through a illness. And for those who BH haven’t had a sick family member and beezrat hashem will never have should know that they are simply a lifeline. Always there and always thinking about what they can do to take their chesed to the next level.

Our family will forever be makir tov to them for what they have done for us and continue to do. Every runner that signs up is essentially pledging $3600 to join the CL team. Aside from the training they do they must also raise the $$. On the link below there is a team Eli page which shows how much together the team has raised but you can click on each persons name and donate directly to their pledge. We beezrat hashem hope as a family to be there together with Eli who will be pushed in a wheelchair/stroller by one of the runners during the marathon

I look at this as a insurance plan that hopefully your donation should chas vshalom never be used towards your family or anyone you know but for us its the ultimate lifeline. Again I ask that anyone that can should please donate whatever they can “every dollar counts”. If you can donate $5 great if you can do more even better. If you can fully sponsor a runner would be amazing. There is also nothing wrong with a runner more then fulfilling their pledges for this great and worthy cause.

Anyone wishing to join the team should please email Ayalaback@gmail.com and anyone wishing to donate should please go to this link: http://www.teamlifeline.org/myteam.php?myid=88.

All I can say simply is “tizku lmitzvos”

The Gradons